The Central Ohio Chapter of the National Hemophilia Foundation has provided financial assistance to families affected by a bleeding disorder when funds are available. The intent of this program is to assist families who have additional financial strains due to the bleeding disorder. Because our funds are limited, and families’ needs are increasing, it is necessary to have a system of guidelines in place. The chapter realizes that most families with bleeding disorders have financial burdens. However, the purpose of the program is to help people with one-time only, extraordinary expenses. Unfortunately, the chapter does not have the resources to help with usual and customary living and medical expenses. We regret that not all families may receive assistance.
Download Financial Assistance Application HERE.
Families affected by a bleeding or clotting disorder may seek financial assistance from the chapter after all other community resources are exhausted. Eligible families are those living within the chapter’s service area or are seen at the Hemostasis and Thrombosis Centers located at The Ohio State University Medical Center and Nationwide Children’s Hospital. This fund is to offer assistance in situations that are caused by the diagnosis or which are more severe due to the diagnosis. (Definition of “families” is the immediate family living with the person with the bleeding disorder).
All requests must go through the Hemophilia Treatment Center (HTC) Social Worker. They will assist with filling out the application and submit it directly to the Chapter’s Executive Director.
Types of Expenses Covered (by priority level)
- Medical bills related to the diagnosis or treatment of a bleeding disorder
- Dental bills
- Medication used to treat a bleeding disorder
- Medic Alert ID tags
- Transportation to appointments at an accredited Hemophilia Treatment Center
- Psychosocial treatments
- Housing (rent, electric, mortgage, etc)
- Other items to be addressed at the discretion of the Board of Directors
Transportation to and from Hemophilia Treatment Centers and Medic Alert ID tags do not count toward the annual maximum. Requests that fall into the 2nd or 3rd priority level will only be granted if funds are available after all requests in the 1st priority level have been honored.
1. All persons requesting assistance will be directed to the Hemophilia Treatment Center (HTC) Social Worker for determination of eligibility and financial need. The Social Worker will provide financial counseling and refer applicant to all appropriate community resources using the chapter’s Emergency Financial Assistance Program as the last resort.
2. The Social Worker will request documentation from the family to demonstrate that they have applied for appropriate programs. Acceptable proof can include copies of bills, letters proving access to services, etc. An Emergency Financial Assistance Application Form will be completed and submitted to the chapter’s Executive Director with each request. This form includes a release of information clause that must be signed by each family to clear information exchange among the HTC staff and the chapter’s Executive Director. Information will be exchanged on a need-to-know basis and will be maintained in total confidence.
3. The Executive Director will make a decision on all requests that are $250 or less. A request above $250.00 (up to $500) can be considered in extreme circumstances, but will be sent for review/approval by the Board Treasurer and social worker at the opposite HTC.
4. Funding is not paid directly to a patient or the patient’s family. Rather, the billing source (third party) will be paid directly. A copy of the invoice is required for the chapter’s auditing purposes.
5. Families may not request more than $1,500 in a lifetime for each member of the family who has a bleeding disorder. This assistance is cumulative, so a family with two members affected by bleeding disorders may seek assistance not to exceed $3,000 ($1,500 per child) in the patient’s lifetimes. In extreme circumstances, requests above the guideline limits will be considered, but must go to an executive committee for consideration and approval.